GENERAL HEALTH INFO
- HEALTHFINDER.GOV
A website of the federal government, this site has health info from A-Z, health news, find a doctor, dentist, or other healthcare provider search engine. Also find a health center or home health care, long-term care, hospitals and more. Find public libraries or view the network of libraries for blind and physically handicapped individuals. Also has a “MyHealthFinder” function that will help you to figure out which health tests/treatments might be needed for you.
-
MEDSHADOW.ORG
This site is run by the Medshadow Foundation, which seeks to give more information about drugs and their affects, many of which are not well known by the public. Informative and useful, with a panel of experts including doctors and other professionals.
-
NIH.GOV
The website of the National Institutes of Health; has health information lines you can call to get information on disease, conditions, addictions and more. There is also a health services locator (healthfinder.gov) that can assist with finding a doctor, dentist, or other health providers. Also has information about clinical trials, and many other resources.
- PATIENT.INFO
Patient forums on diseases and conditions, organized into easy to navigate areas, blogs, symptom checker, shop for products-price comparisons.
PATIENT PRIVACY RIGHTS
-
PATIENTPRIVACYRIGHTS.ORG/
The foundation’s mission is to educate and work collaboratively with patients and organizations to restore the ethical right to health information privacy, the foundation of the patient-physician relationship, in law, policy, and technology.
BIOMEDICAL RESEARCH LITERATURE AND PAPERS
-
NCBI.NLM.NIH.GOV/PUBMED/
A resource of the National Library of Medicine (NIH)-PubMed comprises more than 24 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites. Search by keyword(s) to find papers.
-
DOAJ.ORG/
Directory of Open Access Journals – search by subject for open access research papers.
DRUG INFORMATION
-
DRUGS.COM
Information about prescription drugs, reviews of drugs by patients, and related health information. Other resources on this website: find drugs by name A-Z, a pill identifier, and an interactions checker, Q & A Center and more.
PRESCRIPTIONS
-
PILLPACK.COM
PillPack is a service that fills your prescriptions in daily packs, labeled with all the details needed. Proactive management of your prescriptions with refills & great customer service. Free shipping. There is no extra cost for pillpack beyond regular monthly co-pays. 24/7 support.
ASK A DOCTOR QUESTIONS ONLINE
-
HEALTHTAP.COM
You can get advice from doctors on this site – several plans offered, ranging from free to paid versions on a monthly basis. You can ask short questions about your health and get answers sent to your email by a doctor.
FIND A DOCTOR OR DENTIST OR OTHER HEALTH PROFESSIONAL
-
HEALTHFINDER.GOV
Find a local doctor, dentist, or other health professional using the search tool. Many other resources, including finding health centers, home health care, etc. Also find federal agencies and other organizations.
DOCTOR / DENTIST RATINGS
- DOCTOR-OOGLE.COM
This site has reviews of dentists by patients, and a dentist finder. It also has a price finder for dental procedures and shows what individual dentists tend to charge for them. It accepts no advertising. You can purchase a lifetime membership if desired, to see reviews of any dentist in their database. Or use the search function to research an individual dentist.
PATIENT PARTICIPANT RESEARCH BOARDS AND FORUMS
- PATIENT.INFO
Patient forums on diseases and conditions, organized into easy to navigate areas, blogs, symptom checker, shop for products-price comparisons,
-
PATIENTSLIKEME.COM
General health info & more. Medical calculators such as BMI, cardiac risk, and many more. You can join the patient forums and communicate with patients who have the same conditions, explore resources, and help medical research by comparing symptoms, treatments, and experiences; also track your health.
FIND CLINICAL TRIALS
-
CLINLIFE.COM
Find clinical trials, information about clinical trials and how they work, and how they lead to drug discovery and development. There’s also a guide to medical conditions, and a news section.
-
CLINICALTRIALS.GOV
A service of the U.S. National Institutes of Health. Find clinical trials by subject all over the world, and other info about participation. There is also a glossary of clinical trial terms and more.
-
RESEARCHMATCH.ORG
This site is run by Vanderbilt University and is partly funded by NIH. It matches volunteers with researchers. Over 100,000 volunteers have signed up for 565 studies through this service.
RESOURCES / FINANCIAL ASSISTANCE FOR PATIENTS
-
PATIENTADVOCATE.ORG
This foundation provides direct services to patients and help them navigate the health care system and its related foundation (NPAF-National Patient Advocate Foundation) works to improve the health care system. PAF is a national 501(c)3 organization that provides direct case management services and financial assistance to patients and caregivers. These include helping people navigate the health care system, working with health care providers, payers and employers to assure that patients have access to affordable care, financial and co-pay assistance and teaching self-advocacy to patients and caregivers. The foundation provides no-cost case management to patients provided they meet certain criteria. Financial assistance may be available to patients via grants from several funds, or through co-pay relief. The website also has a number of educational resources. In addition there is a national financial resource directory under the tab “Explore Our Resources”, where an uninsured or underinsured patient can search for assistance.
FUNCTIONAL MEDICINE
-
FUNCTIONALMEDICINE.ORG
Functional Medicine looks at the underlying causes of disease, and utilizes a patient-centered approach. Functional Medicine practitioners spend time with their patients, listening to their histories and looking at the interactions among genetic, environmental, and lifestyle factors that can influence long-term health and complex, chronic disease. In this way, Functional Medicine supports the unique expression of health and vitality for each individual. This site has a search feature to help you find a functional medicine physician.
CHILDREN’S HEALTH
-
KIDSHEALTH.ORG
Information about children’s health – lists of conditions and explanations, nutrition and fitness, emotions and behavior, growth and development, doctors and hospitals, and more.
MENTAL HEALTH
ADHD
-
CHADD.ORG
National ADHD resource – support, advocacy, and more.
ALTERNATIVE AND HOLISTIC TREATMENTS FOR MENTAL ILLNESS
-
HEARING-VOICES.ORG
This organization, based in the U.K., seeks to share understanding of and with those who hear voices and/or experience other auditory or sensory experiences. the approach is understanding and not necessarily prescribing medications or engaging in traditional psychiatry.
SUICIDE PREVENTION
-
AFSP.ORG
The American Foundation for Suicide Prevention. Help, information, and a hotline for anyone struggling with suicide. Resources for students, researchers, advocates, health professionals and much more.
DISEASES / SYNDROMES / CONDITIONS
CANCER
-
CANCERCOMMONS.ORG
This is an organization which provides an expert network to help you identify your best options quickly, clearly, and free of charge, in the event of a cancer diagnosis. From the website: “Do you have a challenging case? Cancer Commons will review your case, consult with leading cancer experts, and give you evidence-based opinions. Our service is 100% free to patients and their families, and is entirely confidential.” There is also a knowledge blog about the latest treatments, patient stories, and news.
CORONAVIRUS / COVID-19
-
COVID19 SURVIVOR CORPS
This is a Facebook network of COVID-19 survivors offering support and information, and links to clinical trials. There is a huge need for blood donations from COVID-19 survivors which can be used in clinical trials to test treatment methods.
CYSTIC FIBROSIS
DYSPRAXIA
ENDOMETRIOSIS
FOOD ALLERGIES
-
FOODALLERGY.ORG
Information about managing food allergies, lists of foods to avoid, info about epinephrine injectors, updates on research, where to find clinical trials and more.
HEPATITIS B
- HEPB.ORG
The website of the Hepatits B Foundation. There are information resources, a clinical trial finder, liver specialist directory, and more.
LEWY BODY DEMENTIA
-
LBDA.ORG
Information about Lewy Body Dementia, resources, support, and more.
SCOLIOSIS
- SRS.ORG
Website of the Scoliosis Research Society, with resources for patients including patient stories, information, and more. Also has a “Find a Specialist” function.
SUDDEN UNEXPLAINED DEATH IN CHILDHOOD
-
SUDC.ORG
The Sudden Unexplained Death in Childhood Foundation; this foundation is dedicated to increasing awareness of this syndrome and funding research, and advocating for the needs of families affected by SUDC. Medical information, grief services and resources for families, information about pending legislation and more.
TRAUMATIC BRAIN INJURY/CONCUSSION
- BRAINLINE.ORG
Information about Concussions/Traumatic Brain Injury (TBI), types of brain injuries, treatments, etc. This site has a partner site, BrainlineMilitary.org, which also has a good deal of information.
